Friday, December 23, 2011

BEP Round 1 Day 5

Feeling bad, I will update later after I have premeds in me.  I woke up this morning probably at a O:6 P:0 N:7 T:8

9:45am O:3 P:0 N:4 T:6
Short post for now. Got my premeds, feeling better but not great. Couldn't eat anything this morning. However, jenn brought something once I had my premeds and I ate most of it. Chicken, spinach, and rice. I would add this word of advice, at least for me the couple of hours after "premeds" are my best of the day usually so take advantage of that and eat while you can. Also never stop drinking fluids. I think my main issue yesterday with mouth sores (which I still have) was due to eating then not Washing out my mouth AND not drinking much since I was asleep for most of the day.

10:45am O:2 P:0 N:2 T:7
Overall I am feeling better. Nausea is much better as well and eating helped earlier. Still very tired due to chemo and the lovely Benadryl. I just keep telling myself today is the last day of "hell week" just gotta make it through. Does worry me a bit that the next two rounds will be worse but I will tackle that when I get there.

12:25pm O:1 P:0 N:1 T:4
Hey everyone I am feeling much better. Still super hungry but we are going to see what I can eat when we get home. craving cheese for some reason. Cheese pizza, cheese enchilada, or cheese burrito something. So odd. Anyway I have developed a new thing, my right hand is quite weak. Ie I am having a hard time squeezing the little ball thing you get when you give blood. Fingers seem fine (which would be more expected from the plat) but overall hand compression is shaky and difficult.

1:15pm O:1 P:0 N:1 T:2
WEEK ONE DONE! So its official I survived my first "hell week" of BEP chemo. Now I still have my pre-meds in my system right now, which is why I still feel good BUT hopefully with the added new meds they gave me i can help taper off to a "decent" level and not crash. I am going to go ahead and dose to Dex tomorrow and xmas to help keep me good through the holidays. Maybe by the time that wears off i will have recovered a bit. Anyway, great news is I don't have any chemo tomorrow or for 3 days even. It will be a nice break my body could use it.  Here is the "chair pic" of the day, granted not that over joyous in the pic but steadfast and holding in to the end! :-P  I also want to say a HUGE thanks to my wife, she has been amazing through this week and I couldn't have done it without her... even when I was a bear sometimes or less than cooperative she helped out and got me through it.

 
7:35pm O:5 P:0 N:6 T:4
So I am getting that sinking feeling that usually comes in the evenings as the nice "pre-med" cocktail wears off.  I have taken the new nausea meds, and everything else but it doesn't seem to be keeping it at bay.  My stomach is very sour, I feel like the wrong smell or random thought of some type of food could cause bad things to happen.  I am tired but its more of an overall body ache like tired, not really a "sleepy" tired.  Sleeping doesn't feel like it would help because it doesn't really seem to correlate to any physical thing.  As an example I took a ~hour nap earlier and woke up worse.  So that's 2 out of 3 for that tactic.  Seems like yesterday the afternoon nap helped but the day before and today it seemed to only make things worse.  Jenn is being great, she is making cheese enchiladas which I was craving so bad I am hoping I can still stomach them.  At this point I am not sure what to do to make myself feel better which is the most annoying thing of all.

6 comments:

  1. hoping you have a better day. would like to help you with you're eating problem. hope you guys enjoy the holidays

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  2. Not quite the diet plan you're after is it? Hopefully the weekend will help you recover some.

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  3. I love you. Just get through today. You knew it would be tough, but you are very strong and you will beat this! Try to eat something to keep up your strength.

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  4. Heard Jenn made you some humus too... Delena's uncle says it is good for the heart, mind, body and soul. As they say in arabic... sahtan(it literally means two healths but when you say it it's like you're wishing them health after eating).

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  5. I just thought I'd check to see how the rest of your week went. It sounds like you did great for an otherwise shitty week. My apologies for my earlier comment regarding how you might feel later in the week, the different experiences with BEP really do make this a personal journey. During my ‘on’ week last week there was no way I could put down coherent thoughts on paper such as you have (very impressed), however, I can relate to that cheese craving ; 3 cheeses pizzas in the last 4 days demolished. Enjoy your greatly deserved break. Merry Christmas.

    FYI: I also love good craft beer, absolutely no craving for one of those however.

    -Rob

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  6. Thanks for all the updates Mike. We have been praying for you on a daily basis. I hope you can have an O:0 P:0 N:0 T:0 Christmas. Let me know if there's anything I can do for you. Even if its just to log in to gChat for some chit chat.

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