Monday, December 19, 2011

BEP Round 1 Day 1

I am going to update this throughout the day. At the start of each log I am going to put a rating of pain, nausea, and tiredness like this P:X N:Y T:Z. All on a scale from 0-10.
7am P:1 N:0 T:0
Woke up and started taking pre meds. Lower back still a bit of a dull pain but nothing major. Thankfully I have Emend which I have read online is a Huge help. Chemo session starts at 8am.
8:30 P:1 N:0 T:0
Starting, just putting in the antinausea stuff right now but here is a pic: FYI "accesing your port" is not painless even with the numbing stuff
9:30 P:1 N:0 T:0
Officially started chemo, they just started the Cispatin bag. Platinum not only looks good in your grill or around the neck of your main squeeze it can fight cancer too. Who knew! :-D
10:47 P:1 N:0 T:2
So I have a reaction to the Etoposide. They started the drip, and a few seconds later I har a hard time breathing then got flushed. Jenn ran to get someone and a minute or so later i lelt like I was on fire everywhere.  They stopped the drip, gave me some oxygen and some and a few other things.  I am fine now but getting more and more tired. They are going to wait a few minutes and try again. Fun times.
1:00 P:0 N:0 T:8
So the Benadryl whooped me up but I am handling the Etoposide now just at a slower than normal rate. Oh and I will be getting my Bleo today. Funny enough the doctor says my reaction is actually to what the Etoposie but to the solution its mixed with. There is another chemo drug with the same mix solution that causes people the same reaction he says. Interesting. Well if you are going to have a reaction at a hospitol is a good place for it.
1:15 P:0 N:0 T:9
Still getting destroyed by the Benadryl.  They did a test run of the bleo (small dosage) to make sure I could handle it.  All went well.  They gave me the full bag.  I don't remember much of this since i was asleep nearly the whole time.
2:30 P:1 N:0 T:4
All done day 1down 20 more to go :-P I will post some pics later
6:00 P:0 N:0 T: 6
Doing ok at home, my taste is already all messed up.  I have a nasty metallic/medicine taste in my mouth.  Have you ever had a nasty knock off "medicine" and that odd taste it has in your mouth before you swallow it?  Its kinda like that grinding up one of those pills and adding metallic flakes to it.. then coating your mouth with it.  Everything taste like it, even water.  Also I have some tiny sores on my tongue but I gargled some salt water and hopefully that will help.  Side note, gargling salt water does remove that taste for 5-10 minutes but it tastes horrible too HAHAHAH.


===== Day Summary =====
All in all I think it was a pretty good day, aside from the crazy over tiredness from the HUGE Benadryl I feel decent.  Some slight nausea overall but I think the meds are really helping me there.  So far no sign of the "Bleo Fever/Chills".  Just that one bad reaction to Etoposide's solution medium, the Dr did say that usually people's reaction to it goes down over time so maybe after this fist hell week the next round I won't need the Benadryl which would be nice.  I am going to have a light dinner, watch some TV then get ready for day 2!


2 comments:

  1. Stay strong, you will beat this!

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  2. hope all is going well for you today i would love to hear from you when you have time

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